I decided to start this blog because there are limited resources out there for mother's of children or mother's to be of children with omphaloceles. When I learned of my baby's diagnosis I was 12 weeks pregnant and felt like the rug had been pulled from under me. I spent days researching information on children with omphaloceles (SCARY as you may already know), omphalocele repairs, best hospitals and pretty much anything I could get my hands onto at the time. I also spent days trying to find a place where I could talk to other mother's of omphalocele children...the blogs or forums were very limited...needless to say I didn't find anything on The Bump. That being said, is why I started this blog...I need a place where I can talk to other mother's who have been or are in the same situation. WE need a place to vent, ask questions, laugh, and cry when we need to without pressure or fear.
I as I am sure you did, I spent days asking, "why us, why are we the 1 in 5,000?" I couldn't stop thinking about everything I had done in the past weeks, what I ate, what I cleaned with, how I slept, and my husband did the same. If you are just tuning in or know about omphaloceles you know that YOU did not do anything to create this birth defect in your child.
I am not a doctor nor an expert in anything medical, I just have my thoughts and the information I researched or have learned through my conversations with my physicians and counselors. I plan on putting what I find here on this blog to share with you all.
Thank you for taking the time to stop by, I hope you can find a friend here, support, and most of all know that you are not alone in this...
