tag:blogger.com,1999:blog-2129328657922231116.comments2023-08-03T04:27:28.750-04:00Omphalocele MomOmomtoJhttp://www.blogger.com/profile/09328600418437528650noreply@blogger.comBlogger211125tag:blogger.com,1999:blog-2129328657922231116.post-52518871560542123082016-06-20T01:07:26.484-04:002016-06-20T01:07:26.484-04:00In the journey of life, we will all have to face h...In the journey of life, we will all have to face heart wrenching situations, of which we will need to let go of cherished goals and take on what may at first seem to be less desirable outcomes. <br /><br />No matter the reason(s) that drives us to make certain choices, we all reach for and make choices that seem most fitting (or right) for our unique situations.<br /><br />Still, no one should have to feel that he/she is being placed under social pressure, or scrutiny, and must disclose to another the why's behind their personal choices.<br /><br />It's a terrible thing that the covert and overt child feeding wars have continued for so long. It shows how pathetic a condition many are in when it has common practice to seek to force one's personal views upon others (and I'm not guilt free of this, but have learned it's a detrimental practice to self and others). While there is nothing wrong with offering advice and sharing experiences, timing and manner do make a difference.<br /><br />All are free to choose what is believed to be most beneficial, and meaningful, after all is said and done. We seek, we experience, and we learn, and we move forward wiser and wiser as the cycle continues. <br /><br />I'm thankful for you sharing how you have come to terms with the reality of your situation, and have made it through the sorrow and guilt of needing to let go of a most cherished goal and embrace a new outlook. I've had to make hard decisions also regarding breastfeeding, and in other ways! So glad we are on the other side of those perplexing situations now :). No need to fuel the hate wars in either direction- my goal is to let compassion meet with hearts in need.<br /><br />(((Hugs)))..., for the journey ahead!vtbhowardhttps://www.blogger.com/profile/12229577493150265068noreply@blogger.comtag:blogger.com,1999:blog-2129328657922231116.post-28090856286536930652014-05-21T00:25:27.764-04:002014-05-21T00:25:27.764-04:00Thats beautiful!!! I cant wait for my daughter to ...Thats beautiful!!! I cant wait for my daughter to make it to that point!!! Great job Jackson!!!Anonymoushttps://www.blogger.com/profile/16169386551416068142noreply@blogger.comtag:blogger.com,1999:blog-2129328657922231116.post-75457089844466579312013-11-20T20:20:05.850-05:002013-11-20T20:20:05.850-05:00Hi, my son was born with a large omphalocele. He...Hi, my son was born with a large omphalocele. He is 5 years old now. There is a support group--it's called mothers of omphaloceles. There is a facebook page and there are a bunch of us on there. It is a place were we can ask questions, offer support, and even just vent. <br />CJmomhttps://www.blogger.com/profile/11368860855895739993noreply@blogger.comtag:blogger.com,1999:blog-2129328657922231116.post-27223367270647460372013-10-10T14:46:30.996-04:002013-10-10T14:46:30.996-04:00My son was born in June 2013 with an omphalocele a...My son was born in June 2013 with an omphalocele and they corrected it the day after he was born. My question is did your baby have any problems after he was born? My son is just not a happy baby its like he is hurting and I don't know what to do I thought it could be colic but I don't know. Please help Miss Kayla Lynnhttps://www.blogger.com/profile/08316568156902604007noreply@blogger.comtag:blogger.com,1999:blog-2129328657922231116.post-30501166998875466092013-07-12T19:43:50.983-04:002013-07-12T19:43:50.983-04:00Blessedby5..,I'm so glad you found my blog and...Blessedby5..,I'm so glad you found my blog and that it's able to give you some solace. Thinking about you and your family. Let me know how your results come out. I'm here if you need anything. OmomtoJhttps://www.blogger.com/profile/09328600418437528650noreply@blogger.comtag:blogger.com,1999:blog-2129328657922231116.post-82284319300389290682013-07-12T14:06:00.970-04:002013-07-12T14:06:00.970-04:00We are expecting our 5th baby and are seeing a spe...We are expecting our 5th baby and are seeing a specialist next week to confirm what type of abdominal wall defect we are dealing with. It was detected on a 11 week ultrasound- I have read all the frightening info out there, I have cried, prayed and tried to put on the bravest face until we know... but I am so scared. Thank you for making this blog so that moms like me know there is hope and that sometimes things turn out okay.Blessedby5https://www.blogger.com/profile/04895633368493632151noreply@blogger.comtag:blogger.com,1999:blog-2129328657922231116.post-52660440469311914242013-07-01T11:31:21.042-04:002013-07-01T11:31:21.042-04:00Hi Melody,
Sorry for the delayed response. As you...Hi Melody,<br /> Sorry for the delayed response. As you see I just had another happy and birth defect free baby boy. Hope you are well. Hope your little one is thriving. OmomtoJhttps://www.blogger.com/profile/09328600418437528650noreply@blogger.comtag:blogger.com,1999:blog-2129328657922231116.post-51133317662371175022013-07-01T11:28:51.831-04:002013-07-01T11:28:51.831-04:00Hello Ruth! So glad you were able to find my blog ...Hello Ruth! So glad you were able to find my blog and that it is giving you some solace. Thinking about you. Hope your amnio went well. Please let me know if you have any questions or just need to talk. OmomtoJhttps://www.blogger.com/profile/09328600418437528650noreply@blogger.comtag:blogger.com,1999:blog-2129328657922231116.post-66081330429449908222013-06-27T02:13:56.653-04:002013-06-27T02:13:56.653-04:00Hi everyone.
I know I have only found this blog n...Hi everyone.<br /><br />I know I have only found this blog now, but I felt the need to comment and give you all a bit of hope!<br /><br />I was born with this condition in 1981 in South Africa-one of the first recorded births in the country. I am now 31, and healthy...with very few symptoms and only a few small complications! I completed university, have an amazing job, and got married last year....all this after the doctors told my parents I wouldnt survive! So, keep your faith, and keep praying!<br /><br />xxxxAnonymoushttps://www.blogger.com/profile/18437949255424682162noreply@blogger.comtag:blogger.com,1999:blog-2129328657922231116.post-2087673178373270812013-06-24T02:04:09.000-04:002013-06-24T02:04:09.000-04:00Your baby is so sweet and cute. I like your video....Your baby is so sweet and cute. I like your video. I also have 1 year old child. He is very naughty. <br /><br />Regards,<br /><a href="http://fit-zen.ca/" rel="nofollow">Pregnancy Massage Kelowna</a>Anonymoushttps://www.blogger.com/profile/10623975798820251223noreply@blogger.comtag:blogger.com,1999:blog-2129328657922231116.post-484251967639606622013-06-23T21:12:47.584-04:002013-06-23T21:12:47.584-04:00Hi, thankyou so much for creating this blog. I am...Hi, thankyou so much for creating this blog. I am 15 weeks and our baby has been diagnosed with omphalocele. We have the amniocentisis tomorrow. I am so hopeful that there is nothing else wrong.<br />I am feeling quite terrified of all the possible outcomes of this pregnancy, but your blog has really helped me today. <br />I'm 34 and already have two beautiful healthy children.<br />I will be exploring your blog much more for sure :) xxxgayatriYOGAhttps://www.blogger.com/profile/11272689304084570675noreply@blogger.comtag:blogger.com,1999:blog-2129328657922231116.post-30765566664545396882012-12-19T12:20:00.250-05:002012-12-19T12:20:00.250-05:00I want to echo the thanks from above. Knowing oth...I want to echo the thanks from above. Knowing others have had successful outcomes gives us so much hope. I've been scouring the internet for positive stories and have happily come across yours.<br /><br />We are in a holding pattern right now, monitoring her development every couple of weeks. Can't wait to meet her.<br /><br />Our best to you and your family.Anonymoushttps://www.blogger.com/profile/09983857948232237110noreply@blogger.comtag:blogger.com,1999:blog-2129328657922231116.post-29927180457679120182012-06-19T15:56:08.575-04:002012-06-19T15:56:08.575-04:00Thank you for your blog. This has been such a help...Thank you for your blog. This has been such a help with all of my questions/fears. <br /><br />The doctors found an abdomen abnormality during the 18 week u/s. Like you, we had not done any testing. We did the amnio the same day as the u/s. We just got back the prelim results which are showing normal. <br /><br />We still have a long way to go and lots more tests to run. We are also waiting to share the news with our families until we know all of the details. I know I will be visiting your blog again and again.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2129328657922231116.post-55622217772401996312012-04-10T17:55:09.482-04:002012-04-10T17:55:09.482-04:00Thanks!! Hope everything is going well for you all...Thanks!! Hope everything is going well for you all.OmomtoJhttps://www.blogger.com/profile/09328600418437528650noreply@blogger.comtag:blogger.com,1999:blog-2129328657922231116.post-7428842561482350842012-04-09T18:31:15.501-04:002012-04-09T18:31:15.501-04:00He is precious! I'm so sorry to hear about you...He is precious! I'm so sorry to hear about your miscarriage, too. I've been there, and it's heartbreaking no matter how early it happens. Sending you a belated hug. Glad you told that law firm where to go. That's a little disturbing that they're posting that stuff on your blog!Jhttps://www.blogger.com/profile/10338749106873124250noreply@blogger.comtag:blogger.com,1999:blog-2129328657922231116.post-91598433897210875892012-03-09T07:14:56.133-05:002012-03-09T07:14:56.133-05:00Love these new pics of Jackson! Haven't checke...Love these new pics of Jackson! Haven't checked in for a while, I wish you well!mhdmomhttps://www.blogger.com/profile/11491228212441380976noreply@blogger.comtag:blogger.com,1999:blog-2129328657922231116.post-17534275221434475512012-02-24T19:47:15.858-05:002012-02-24T19:47:15.858-05:00Jacinta,
The BWS testing was done separately then ...Jacinta,<br />The BWS testing was done separately then the regular chromosome testing from the amnio. My genetic counselor gave me a bunch of codes to relay to my insurance company to see if they would pay for the BWS testing, luckily they did would pay and so we had it done. Our samples got tested in Sweden I think...talk to your genetic counselor.OmomtoJhttps://www.blogger.com/profile/09328600418437528650noreply@blogger.comtag:blogger.com,1999:blog-2129328657922231116.post-66360741015253717282012-02-04T01:45:41.744-05:002012-02-04T01:45:41.744-05:00Hi,just stumbled along your blog as well & jus...Hi,just stumbled along your blog as well & just going thru it now. I'm 22wks with a baby that has an omphalocele & have had the amnio for testing for the 3 syndromes. Was this (WBS) seperate from the 3 chromosomal testing? I'm a bit concerned as the scans i've had have suggested my baby is a wk or so older than it actually is. Thanks for any info. JacintaCouper'smumhttps://www.blogger.com/profile/05024472972768084088noreply@blogger.comtag:blogger.com,1999:blog-2129328657922231116.post-35302731398646003822011-09-08T09:17:40.591-04:002011-09-08T09:17:40.591-04:00How many times have we heard the expression you ar...How many times have we heard the expression you are not the only one going through this...seems no matter what we may be experiencing personally there is always someone else out there going through something similar. Thank God for that; Thank God for the Internet. <br /><br />We have just come back from meeting with the Geneticist, reviewing our 12 week ultrasound results and the options have been put before us. I would prefer to chat 1-1 with omomtoJ since there is no other way to contact you on this blog I hope this message finds you quickly and that you will respond in kind; since we are due to have the CVS and the follow up ultra sound, we would like to understand your (you and your husband's) thoughts going into the Amnio and what scenarios you were putting together. It's important we get your perspective before all the testing, since this will give us a little leverage in how we shape our decisions in light of specific test outcomes. <br /><br />Your perserverance to see this through is truly a blessing and a testament to the medical community but we are still playing in a statistical arena therefore information is key and experience is also a determining factor. <br /><br />Thank you in advance. <br />Bill & Karri<br />kehbeebible@gmail.comsunshinydayhttps://www.blogger.com/profile/12695209600017610730noreply@blogger.comtag:blogger.com,1999:blog-2129328657922231116.post-75016081920254560622011-08-31T18:18:45.691-04:002011-08-31T18:18:45.691-04:00My husband and I found out that we are having an o...My husband and I found out that we are having an o-baby. Thanks for sharing your blog and the links. We are seeking support from families that have been through this experience. It all seems a little scary as I'm only 18 weeks. <br />You little guy is adorable!<br />alisha.cobb@gmail.comCobb Family Journalhttps://www.blogger.com/profile/13163842892824592529noreply@blogger.comtag:blogger.com,1999:blog-2129328657922231116.post-6958398377220624012011-05-03T11:35:17.199-04:002011-05-03T11:35:17.199-04:00He is absolutely adorable. I wish the internet ex...He is absolutely adorable. I wish the internet existed when my son was born with his O. Today he is an adult getting ready to go away to college in fall. We had a long tough road for many years, but I would not trade a thing. He has the scars from the O and from open heart surgery and wears them with warrior pride when he is with his friends at pool parties.<br /><br />Best wishes to all of you.QuiltingKDhttps://www.blogger.com/profile/02332882035010336618noreply@blogger.comtag:blogger.com,1999:blog-2129328657922231116.post-72536799793970334332011-01-05T19:11:43.208-05:002011-01-05T19:11:43.208-05:00Hi, I was wondering if we could "chat" b...Hi, I was wondering if we could "chat" by email. We got the news about 6 weeks ago, I'm 28 weeks now. My email is mriceod@gmail.com.<br /><br />Thanks,<br />MissyUnknownhttps://www.blogger.com/profile/11696966975128388843noreply@blogger.comtag:blogger.com,1999:blog-2129328657922231116.post-49640947949306001692010-11-25T20:27:01.338-05:002010-11-25T20:27:01.338-05:00Dalia,
First, congrats on your pregnancy. Second,...Dalia, <br />First, congrats on your pregnancy. Second, I am really glad that my blog is helping you, that is the exact reason I made it. Please feel free to email me at mdeevy@optonline.net where we can talk more.OmomtoJhttps://www.blogger.com/profile/09328600418437528650noreply@blogger.comtag:blogger.com,1999:blog-2129328657922231116.post-91774503106642824252010-11-03T11:20:15.364-04:002010-11-03T11:20:15.364-04:00Hello Morgan,
I just wanted to say thanks for writ...Hello Morgan,<br />I just wanted to say thanks for writing this blog. I find my self in the same situation and its comforting to read about your experience. We are still early in this journey 16 wks 5 days and I am sure all you have shared will help us through it. It is also great comfort to know your little boy just turned one year. I can't wait to share your blog with my husband.daliashttps://www.blogger.com/profile/08946939737214735959noreply@blogger.comtag:blogger.com,1999:blog-2129328657922231116.post-55776410881711038002010-10-19T18:05:01.782-04:002010-10-19T18:05:01.782-04:00Happy birthday Jackson! I hope you enjoyed that cu...Happy birthday Jackson! I hope you enjoyed that cupcake...it looks like you devoured it :)Brookehttps://www.blogger.com/profile/16875144699705731942noreply@blogger.com